Monthly Archives: December 2008
Yep, this is us at a wedding this past March. One of two times in 3 years that we left our baby overnight someplace else. We’re proud that he did really well.
No, not really! I just wanted to take the time to write a little update on one of my recent posts, “I’m on the Lam”. First part:
Well, today I’m officially a woman who is basking in the sweet sunshine of freedom….. this week I paid my bail of $40.00. The Drake came in with some overtime and gave me a bunch of money, with part of it to go to pay the man. I was still a little annoyed that day and thought that I would file a complaint about the meter-maid who would not come over to the meter to check out my claim of it being disabled. I was there early, which btw, they only give a window of 1/2 hour, 9:00am-9:30am for people to come in if they just want to pay the bail. You have to make an appointment for them to see you if you want to make another court date. At the last minute when I got to the window, I felt a calm… but I still wanted to complain, just this time, formally. Oddly, I didn’t feel any animosity towards the clerk who was reading a book well after 9am. She asked me if I wanted another court date and I said no, just want to pay the bail because I felt that I would go in there predisposed for a failure since I had already missed a court date. In that case, I might have to pay more, and well, $40.00, while pretty cheap as things go, is still a liability for us. She gave me a form to sign that basically said that I waive my right to a court appearance…. AND admission of guilt. That really got me. I told her that I wanted to lodge a complaint against the meter-maid, but was told that signing the form was an admission of guilt… duh! So, I had to just let that one go…. but growled all through the signing of my name.
So, there you have it. I left there with my freedom…… and a receipt.
Number Two. The famous CLASH OF THE CHRISTMAS PARTIES. Okay, so I missed two fun parties this year and there might still be a faint twinge lurking inside… but that’s okay. On Tuesday I got up ready to be into the Rosarian party and I was. A little suspense for the day included that I could not get into the parish hall to set up everything the day before because the custodian was in the hospital with an ear infection. Sound familiar? Because I could not get into our closet to check out our supplies, I had to go and buy coffee and table cloths. As it turned out, we had plenty. To be honest, I never saw them there before and so, I come up short on the necessity of knowing my inventory. I had seen one or two, but didn’t know if we had for all six round tables and other tables for the sides… so I guess I donated them. So, Tuesday morning, the day of the event, I could not even get into the parish hall at the time the receptionist said that I could get in there. Finally got in a good 2.5 hours after… wasted time… The good side is that I had plenty of help and took the prerogative of leaving early (presidents can do that) so that I could cook a big thing of sausage and peppers before having to pick up Gabe at school at three, then come home and get ready, myself. Please understand, as an Italian, I never made this dish… or not in recent memory. I remember that my mom used to boil the links of sweet sausage first, then brown them after all the water evaporated. That took a long time, so I am thinking I’ve got plenty of hours by the stove for 4 pounds of the stuff! Well, a lightning bolt hit me and I got the idea to cut up the links, raw, then saute/brown them in a deep stock pot I have (to keep the splatters inside). While I value that doing it this way knocked off a lot of time, cutting up raw meat in an intestinal casing was not fun… lots of ground up meat being forced out of the casings and I ended up making little meat balls of the stuff that totally came out…. but not bad. Everyone loved it and I got to take about one fourth of what I made home… not bad. Lots of great recipes that night. Got a break on clean up, too. We ended later than scheduled and the pastor was practically chasing us out. I did have to hand over my key to the closet to the former president… but that’s not a problem.
Oh, what was a problem is the fact that I did feel like a puppet that night. I am slowly getting the feeling that I’m just another figure head for this organization. That’s not a good feeling… though strangely, I don’t mind it. I guess I’m not really a leader. I’m more of a team player and more likes to be told what to do, than me telling others what to do. Maybe that will change as I get more familiar and comfortable in this role, but for now, I’m good. Well, twice that night the former president told me to do some things that had no purpose and probably showed me to be just a puppet. That’s what I don’t like. First, she wanted me to just follow two other people who were selling tickets, a mother and son team (in everything) and all I was doing was following them around. I was not told even for what purpose. Then, when they handed out the bonus checks to the pastor and office staff, I was told to stand there and I did, while the treasurer handed out the checks with little comments. I felt like a jerk. Sigh… oh well, at least I don’t have to worry about this group again until March.
Oh, forgot that soon I’ll be visiting three of our housebound members to gift them with shawls and cards that were signed by everyone. See, this is the part that I like and excel in.
I want to take this time to announce I am changing the name of my blog from ~Dragon’s Yen~ to just plain old DragonMommie. I’ve been thinking about it a lot and then, tonight… POP…. took the plunge. I hope this is not too much of an inconvenience to anyone.
So, things have been mentally and emotionally crazy around here lately. I am starting to understand some of the powerlessness that goes along with being a mommie. Needless to say, Little Drake has some issues and I am wracking my brain trying to figure out how to just identity what they are. So many factors are playing at once and they are not playing very nice.
He’s got hearing loss. Don’t remember if it’s in one ear or both. A month ago, I took him to his pediatrician and he found an “impaction”…. meaning he has some wax in there. A week or so later, I brought him to a specialist to be examined and also to take out the wax. We go to the specialist and he took wax out of both of his ears, but really, there was not that much there and the doctor said he didn’t think the wax was the cause for the hearing loss. He also found “subtle” fluid in there and said that the major question was “how chronic” is it. In other words, he didn’t know how long the fluid was there. He wanted to wait a month, without medication, to see if it went away by itself. I didn’t know any better and just went along with the flow. We just had a follow up visit yesterday and it seems that not only is the fluid still there, but now there’s more and on top of that, it’s infected. Well, I wanted to scream. My first thought was, “Hey, if you saw it a month ago and it was not infected, then by what I saw today, that fluid must not have been there very long if it actually can get infected”. Am I making myself clear? I know that I’m not a doctor, with medical training, but am I so far off the mark? It just seems to me that this dr. let my son go home without medication knowing full well that it was possible the he’d come back a month later with an infection.
This is what is making me mad… because now, not only does he need antibiotics, which I try not to give him, but he also needs to take some type of steroid. My baby being placed on a DRUG… albeit only for two weeks, but the side effects of this helpful drug is “some <?>” hyper aggression. Exactly what does “some” mean in this case? I now know how parents feel when there is something really wrong with their babies. I realize that this is small potatoes, but now my little man will change and not be himself for two weeks…
Ugh… I’m sitting here in a turmoil of thoughts and emotions. LD has been behaving erratically in school. We have found out that he also cannot communicate very well. They say that he does try, but is not where he should be. He is also hitting his classmates and I’ve heard the teachers, too. I am beside myself wondering what is causing this behavior. I am wondering if I’ve not done as much as I could do to teach him the right behavior. His teacher tells me that she doesn’t think he is being malicious; but that maybe he just doesn’t “know” what is right and wrong. He often laughs while he is being aggressive. Again, getting back to trying to identify what exactly is causing this behavior… I wish I knew. His teacher thinks he cannot process audio directions; which could be caused by the hearing loss, but with the hearing issue still a question, I sit here still in the dark.
The other day he whacked a cactus rain stick on the floor and it cracked open, with all the gravelly bits flying all over the floor. I was mortified that Gabe broke school property… oh and he also scribbled on the table with a magic marker…. I know, kid stuff… but still. I want to replace it, but the teachers wanted to see if they could fix it first… I have to check back with them. He teacher was so good with him… I am the one who failed miserably that day. All I could do was ask him why he did that… even after we found out that kids his age do NOT understand the concept of “why” and “how”…. so how do you get information from them? Creativity, that’s how… I’m not good at this. His teacher was the best. Miss. Tracey. She simply started to sweep everything up (something I could’ve done) and Gabe was helping her… so nice…. dumb mommie that I am. A great teaching opportunity steamrolled over by my own embarrassment.
The school wants me to get him to a pediatric neurologist. The Ear Guy says that going up that avenue at this time might not be necessary, but he’s leaving it to me to decide. I figure that it can’t hurt at this point. The more information we can get, the better. I’m still just so mad at this Ear Guy! I feel that we wasted a month’s time playing the waiting game with the health and well being of my baby’s hearing. Did you know that while taking this steroid, Gabe’s immune system is weakened? He’ll be more prone to infections and sickness. The label even says to keep him away from people with contagious illness…. oh, GREAT… he only attends public school full time…. oh yeah, he’ll be safe there!
I fret that I was too hard on Gabe for stuff that he could not help. It seems that I am always jerking him back to reality with, “Pay attention!” I have to seriously examine how I am talking to this kid. How much of this due to hearing loss and how much to him just tuning me out… I KNOW he does that! All I can think about is how apprehensive I am to wash his hair, always worrying about water getting in his ears and causing an infection! Seriously, if I wash his hair once a week, it’s a lot. The doctor told me that water getting in his ears from the outside is not the same as the water, on the other side of his ear drum, causing the infection… so there you have it… WASH YOUR KID’S HAIR!
Gotta run… I really can’t think that much anyway.
This was my tree last year.
I name this post for the subject of my post. Her name is Petra and has a son, Lennon, who is loveable, kind, gentle, loving, and just the best son ever…. except when his ammonia levels skyrocket. When this happens, he becomes very aggressive, disoriented, incoherent and has been described as appearing to be a bit crazy. In other words, he becomes a totally different child. Normal ammonia levels are 50-60. I do believe I read that Lennon’s had gotten as high as in the 300’s. Lennon is of preschool age. He has already had two liver transplants. Lennon has Urea Cycle Disorder. Please check out the link for this genetic disease. Can you imagine this happening to your child? I am sitting here doing just that. I cannot imagine myself living through, and witnessing what my friend has witnessed happening to her son. All I can think of is that I have a hard time when my preschooler gets a cut, let alone going through life saving surgery and the gory details that go along with it… just to NOT get graphic about it. Just to think of their little perfect bodies enduring what seems impossible… becomes a reality. It’s a hard reality for mothers to come to grips with; and at the same time, no one should have to experience.
I’m not writing Petra’s whole story here, but if you’re interested, you can find it here. The reason for my writing is that I want to get her story out. She is not asking for donations; but as it happens, she does have an Etsy shop, HERE. She does wonderful work with beads and pyrography, or, wood burning.
I don’t make it a practice to advertise for other people, but I was moved to, today. I figure, “Hey, it’s the Holiday season and maybe someone is out there shopping around for gifts.” A part of me felt powerless until I thought of writing about her. After being paired with Petra in a beading swap, we corresponded ourselves into a friendship that has survived a few long spells of not corresponding. She made me a beautiful bracelet that rests so pretty on my wrist. It doesn’t happen often, that I will just love something that wasn’t made by me. She seems to know what I like.