Yeah. I’ve got stuff to be grateful for. If you read some of my recent posts, you know that I’m between a rock and a hard place trying to find a job. The rock in the hard place is me. The hard place is between two circumstances of life. Job vs. Jobless.
JOB: Trying to be short on the back story, we live without any income and without pubic assistance. It’s getting down to the point of not knowing if we can make the rent next month. Tight and Tough. I need to find a job for money and possibly, if I can manage it, health benefits.
JOBLESS: Being jobless would mean that I’d have all the time in the world to advocate for my son’s education. It’s been non-stop and has spilled over into the summer. I thank God that I am not working… and feel guilty about it.
GRATEFUL: I’m so grateful for the free time I have to do that advocating thing. My boy has been thriving at his school and I feel so grateful for every single person at that school who works with him. It seems that next year he will be pulled out of this school, and away from all the people he knows and who know him. I’m so grateful that I have the luxury of being able to jump right on this thing and I’ve been talking to people, and wrote a letter to request they make an exception for him. See, they decided to build another school in our area and needed to fill it up. My son was not moved to this new school, but to a school in between OUR school and the new school. I guess what it is, is that I don’t want to take that chance and risk all the progress we’ve made, and start over at a different school. SO MANY changes for him to deal with, and so many people he will never see again.
It’s just too God damned much. Also, we fought for things at that school like forming a social skills group, a Lunch Buddy group, both of which are designed to teach the kids appropriate social behavior and create scenarios where they have to interact with one another. They’ve gotten older students in the school to help out with this. It’s HIS community. Also, we, the parents, have been able to successfully work with the professionals at the school. We’ve been able to, I think, change how they see the autistic child. We’ve seen progress in this area, and though they really need to finance this, they are actually suggesting/urging to their professionals to take workshops in autism. That’s a big freaking step. I’ve talked to them about how the kids get labeled and how they had, indeed, labeled an incident incorrectly because they were not familiar enough with what autism is.
They know that we are involved parents. We care. We volunteer. We support them, take their advice, they listen to us and sometimes take our advice on how to handle our son. I mean, it’s been working! We’re a team! Keep calm. Yeah, I know. So can you see how grateful I am that I am jump on this right away? If I were working, I wouldn’t even know about this switching of schools until I got the letter right around a week before school starts. I’m so grateful for the professionals at that school who have listened to me and have spoken to me.
Aside from the above, and of which I can go on and on, another thing I wouldn’t be able to do if I were working would be taking SPAN (Statewide Parent Advocacy Network) workshops. I’ve been learning a lot about our rights and the laws. I am still learning how to approach IEP meetings and interacting with the professionals at school in an effective way, a non-threatening way. Anything having to do with advocacy for the special needs child. Just being exposed and networking with the professionals and other mothers has given me more confidence than I ever thought I’d have. I’m more assertive which surprises the heck out of me and I like it! Another thing I’d really like to do is bring the awareness up to education of the school professionals and also the school body, the neurotypical kids. Ignorance breeds fear. Fear breeds violence.
So yeah. For right now, I can see some light in the darkness… and it’s pretty amazing.
- At the End of the Day (learn4understanding.wordpress.com)
- Peeking out (sebgwrites.wordpress.com)
- Letter #3: Dear Zimbabwe, I am grateful. (dearzimbabwe.wordpress.com)
- 20 Ways to Strive for Excellence in Life (lifehack.org)
- The Poignancy of It All and the Purpose of the Human Form: Becoming Human Is God’s Trippiest Game (mladzema.wordpress.com)
- Sneak Peek – Forever Friends (ellelainey.wordpress.com)
- Peek-a-boo (reemfaruqi.com)
- The Girl No One Really Knew (jemtree.wordpress.com)
- How To Help Young Children Develop Strong Social Skills (familyfocusblog.com)
- An invitation which never came… (ecofinanalysis.com)