Category Archives: Special Needs Education

Light Peeks Through the Darkness


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Yeah.  I’ve got stuff to be grateful for.  If you read some of my recent posts, you know that I’m between a rock and a hard place trying to find a job.  The rock in the hard place is me.  The hard place is between two circumstances of life.  Job vs. Jobless.

JOB:  Trying to be short on the back story, we live without any income and without pubic assistance. It’s getting down to the point of not knowing if we can make the rent next month. Tight and Tough.  I need to find a job for money and possibly, if I can manage it, health benefits.

JOBLESS:  Being jobless would mean that I’d have all the time in the world to advocate for my son’s education. It’s been non-stop and has spilled over into the summer.  I thank God that I am not working… and feel guilty about it.

GRATEFUL:  I’m so grateful for the free time I have to do that advocating thing.  My boy has been thriving at his school and I feel so grateful for every single person at that school who works with him.  It seems that next year he will be pulled out of this school, and away from all the people he knows and who know him.  I’m so grateful that I have the luxury of being able to jump right on this thing and I’ve been talking to people, and wrote a letter to request they make an exception for him.  See, they decided to build another school in our area and needed to fill it up.  My son was not moved to this new school, but to a school in between OUR school and the new school.  I guess what it is, is that I don’t want to take that chance and risk all the progress we’ve made, and start over at a different school.  SO MANY changes for him to deal with, and so many people he will never see again.

It’s just too God damned much.  Also, we fought for things at that school like forming a social skills group, a Lunch Buddy group, both of which are designed to teach the kids appropriate social behavior and create scenarios where they have to interact with one another.  They’ve gotten older students in the school to help out with this.  It’s HIS community.  Also, we, the parents, have been able to successfully work with the professionals at the school.  We’ve been able to, I think, change how they see the autistic child.  We’ve seen progress in this area, and though they really need to finance this, they are actually suggesting/urging to their professionals to take workshops in autism.  That’s a big freaking step.  I’ve talked to them about how the kids get labeled and how they had, indeed, labeled an incident incorrectly because they were not familiar enough with what autism is.

They know that we are involved parents.  We care.  We volunteer.  We support them, take their advice, they listen to us and sometimes take our advice on how to handle our son.  I mean, it’s been working!  We’re a team!  Keep calm. Yeah, I know. So can you see how grateful I am that I am jump on this right away?  If I were working, I wouldn’t even know about this switching of schools until I got the letter right around a week before school starts.  I’m so grateful for the professionals at that school who have listened to me and have spoken to me.

Aside from the above, and of which I can go on and on, another thing I wouldn’t be able to do if I were working would be taking SPAN (Statewide Parent Advocacy Network) workshops.  I’ve been learning a lot about our rights and the laws.  I am still learning how to approach IEP meetings and interacting with the professionals at school in an effective way, a non-threatening way.  Anything having to do with advocacy for the special needs child.  Just being exposed and networking with the professionals and other mothers has given me more confidence than I ever thought I’d have.  I’m more assertive which surprises the heck out of me and I like it!  Another thing I’d really like to do is bring the awareness up to education of the school professionals and also the school body, the neurotypical kids. Ignorance breeds fear.  Fear breeds violence.

So yeah.  For right now, I can see some light in the darkness… and it’s pretty amazing.

Follow up to Yesterday’s Post


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I got so caught up in my own experience with being bullied (This is a Bully Free Zone).  Usually I just have a burst of writing, then publish right away without editing and refining my thoughts.  But where this would normally lead to is my hopes for my child, new to the public school system in an urban area.  Sometimes I see my son as a fragile flower… yeah, that’s me; but it’s definitely a product of also knowing that school aged kids can be with most ferocious of tormentors and I worry about that.

We had an incident this year with bullying, where the adults of the school did not properly, nor thoroughly, assess this incident to appreciate the full story.  What they saw were two kids who accosted my child, one holding his hands behind his back and one punching him in the stomach.  What would that tell you?  These were kids from my son’s second grade class.  They also saw my son laughing, so they presumed that they all were playing.  THAT turned my stomach.  Autistic kids cannot read or present appropriate facial expressions or body cues.  The teacher in the lunchroom did not have the training to recognize this and so she thought that they all were playing.  After I got done flipping my wig, I got ahold of the principal and blasted his ear on the need for training for ALL personnel who come into contact with my kid.  I explained to him what happened and that I had extensively questioned my son and concluded that this was not playing.  As an outcast during my school years, I realized that he, who also does not have many friends, must have been happy to have attention from his peers, in ANY form, hence his laughter.  Also, he did not realize what had actually happened.  My son said that they thought he was a “robber.”  It took several separate questioning sessions to get out of him that he was not playing with them in the first place and that their actions HURT him.  I think he still was totally clueless as to what had transpired.  Thank GOD that the school acted accordingly in that they have zero tolerance for those actions whether it was play or not play.  These boys are now separated in the classroom.

Getting back to educating our teachers.  Yeah, does that sound like an oxi-moron?  It does to me.  These school districts do not want to pay for the continuing education and training for the teachers in their schools. Our principal is suggesting or urging our teachers to get training in autism.  It may not seem like it, but it’s a pretty BIG damn step!  At the very least, he is acknowledging the need, but sadly not ready to have the district pay for it.  Hopefully, they will have more of these workshops included when teachers have to go for their “inservices”.  It’s a day when the district’s kids have the day off, but teachers must go to these, I want to say, conventions and take workshops.

Plain and simple.  I do not want my kid bullied.  My rant of yesterday stems from that; but as a mother of one, I feel for all children, not just my own.  Forget about No Child Left Behind.  NO CHILD SHOULD EXPERIENCE THE PAIN OF BEING BULLIED, period.  My heart is bursting.

Autism: The Life 2012


Last night my head was swirling around with ideas, but as always when it gets time to write them down, I’m a blank.  So, I’ll do what I always do, write.  Write down the strands of thought that surround my head like a maiden’s soft, light hair that moves with the breeze in a surreal kind of way.  Yes, I’m awake and hope you have the inclination to stay with me.

When we first leaned that our boy was autistic, I was devastated.  For him and for us.  We were new parents, well not “new” exactly, but he is our first and only one, which will probably remain that way since we are in our early and mid fifties.  We didn’t think we’d have him (if you’d like to read those details, you can look here) in the first place, so after seven years, I’m not so sure that God has another one in His plan for us.  In a way, I’m relieved as it would be a hardship, both financially and probably physically; but I do wish that our Gabe could have a brother or sister.   Not too long ago, he’d ask for one, almost constantly; and even now, he looks at my belly and asks if I’m pregnant…. oh boy.  Which reminds me of a most embarrassing couple of moments over this weekend at a hotel we were staying at for a wedding.  We walked by the hotel’s lounge and there was a man there with a huge gut.  Quite out of the blue, Gabe said, rather loudly, “Hey MOM, that guy’s PREGNANT!”  Well, I tried to ignore what he said which was a pretty bad mistake as he kept repeating himself all the louder because he didn’t think I heard him the first time, “MOOOM….”  It was all I could do to muzzle him and get him out the front door.   I tried to explain to him that saying things like that were inappropriate and tried to explain the concept of being insulted… think I failed with that, too.  This has not been the first time he’s brought the concept of men being pregnant as he has frequently expressed his belief that HE was pregnant just because he ate more than usual, gaining a pretty big belly.   He’d lift up his shirt, pointed to his belly and say, “MOM, I’m almost pregnant~!”  Now, THAT was funny.  Still, I had a hard time explaining that men and boys do not get pregnant, only women.  He’s not asked me what exactly that is “yet”, and I’m grateful.  After I thought I did a decent job explaining that men do not get pregnant, I was validated because the next day, we saw that man again and Gabe said (all too loudly), “MOM, there’s that man with the BIG belly~!”  Um… Yep.

Still, the incident, not surprisingly, had me pretty upset even though I tried not to impress that upon him, I’m sure that I did.  I’m maybe too obsessed about weight, or looks being singled out for laughs.  I’m quite positive that wasn’t the intent, but I’m still pretty sensitive to that and don’t want Gabe growing up, insulting people no matter what the intent.  He needs to learn this very differently than most kids do.  Even though we know that autistic children can learn social manners, it’s not so simple.  They do not pick up on social cues like the rest of us can, instinctually.  They need to be presented with the concept and they learn it much like an academic lesson in school and they need to practice it over and over.  They may never empathize, but they can learn to understand intellectually how important it is to learn and practice; but they may never truly “feel” that importance.  I’m not even sure that Gabe will ever learn to walk in anothers shoes, which has always been important to me, in my learning.  I always felt the need to REALLY understand things and, indeed, I’ve rarely followed through with  anything unless I truly understood to my own satisfaction the importance of whatever it was.

WHAT ARE SOCIAL SKILLS?

Social Skills are a set of behaviors that allow a child to get along better with other people.  A child with adequate social skills can adjust well to changes in his environment and can avoid verbal and physical confrontations with other people. A child who has poorly developed social skills, however, may have poor self-esteem, may display conduct problems (fighting, arguing, defying adults), and may have difficulty developing peer relationships.

WHAT IS A SOCIAL SKILLS GROUP?

Social skills groups focus on teaching children a variety of social skills to help improve their ability to make and keep friends, develop more self-confidence, and behave more appropriately.  Role-plays and group interaction will give the children opportunities to practice these skills during the group session.  The therapist will utilize behavioral reinforcement to promote rule compliance, participation, and use of appropriate social skills, while also encouraging and reinforcing the children to practice these skills outside of the session.  Objective information regarding the children’s behavior will be gathered before and after the group to measure the children’s progress and parents will be provided with written feedback at the conclusion of each group.

We are truly blessed to have gotten Gabe into a social skills group.  Please see the above for a good description.  This is where they learn behaviors which are so-called socially accepted behaviors.  The problem is that though they may try to interact with their peers, they never learned how to do that, as other children have learned and that is by picking up on the silent social cues and body language.  They don’t intuit what is the appropriate, recognizable response or non-response to what the other child/peer displays.  Also, Gabe’s group is a group of peers.  They see it as play and I’m sure Gabe thinks it’s a play date.

Gabe is seven years old now and maybe that’s too young to learn about how/why a person can be insulted.  I ended up repeating myself about the man maybe getting insulted, but then I realized that he probably has no what that would mean.  I am dedicated to keeping open communications with him.  He knows that whatever his question is, I will listen and I am frequently urging him to share his thoughts.  He knows that I will urge him to just tell me his thoughts.  Most times I’ve got to admit that I don’t really understand what comes out of his head, but I’ve learned to ask questions so that he’d have to elaborate on what he’s thinking.  I’ve also had to learn when to just let it be when that doesn’t seem possible.  Sometimes I grieve for the lack of communication and understanding.  Lots of times I feel a total disconnect.  I grieve because I’ve always dreamed of being a mom much different from my own mom.  She was totally unapproachable and I never opened up to her or she to me.  My dream was to have a totally different relationship with my children.  Open communication all the way.  If you can’t do that, what the heck kind of relationship IS that, anyway?  I am learning that Gabe conveys more to me than words ever could.  He is my teacher and has been from the first moment he took his first breath.  That is a post within itself.  So, Gabe is teaching me that not all relationships are the same.  Huh?  Didn’t I know that already?  Apparently not.

One last paragraph.  There are so many facets to Autism.  Just like the disorder, itself, there are so many areas of specialty, so many areas that really need to be improved, that really need the attention of the professionals and people just like you.  It’s totally overwhelming, so I take it in little bites.  The area I find myself focusing on lately is how badly our teachers NEED to be educated about autism.  Yet, our schools will fight to the death to stay in denial.  They refuse to acknowledge that intervention services are needed for the autistic child to get an “appropriate” education.  Forgive me, but mention the word “quality” and “education” together and you can kiss any intervention service good bye.   Does that make sense?  I have to ask because I’m not college educated, you know.  Total idiocy!  No matter how much compassion a teacher has, if he/she is not trained to recognize and deal with any problems that arise, not given the strategies they need to handle the tough situations, they will just end up feeling frustrated and might even label a child with a negative label, even… YES… even the label of BULLY.  This of course, would most likely stem from ignorance, but does anyone want this to happen?  I know I don’t.  My own son could be labeled as a bully because he tried, in his own “socially unacceptable” way, to make friends with another boy or just trying to get someone’s attention, again in his own way.  Maybe that need for attention was misinterpreted as bullying…. and I do see how that can happen.  I can see my son being confused and feeling rejected and may be even push the other kid in an attempt to gain their attention and maybe friendship.  Nobody and I mean nobody would see it that way in the mainstream world.   I’ve been through a rough patch lately with a mainstream mother verbalizing in front of me that she would not want her typical kid in the same class as my little guy.  That hurt a LOT.  It was only after a lot of hurt that I realized that she was probably severely uneducated, maybe misguided  even as she strives on a daily basis to project her highly educated personality.  The sad fact is that EVERYONE is in dire need to be educated, teachers, typical children, typical moms and dads.  So, maybe my focus should be on wholesale education for everyone… you can’t be overly educated, can you?

It DOES Get Better


This morning I’m so sad and, well, pretty much upset by a post I read at a diary of a mom, a blog with a lot of love and inspiration.  She is a mom of an autistic girl writing about their family’s experiences and the little joys of every day life.  This morning it was on a subject that is near and dear to my heart:  Education and Support for Special Needs Children, in our case, the autistic child.  So now, as usual when something touches me this way, I write…..

The post in the a diary of a mom’s blog was about two women who murdered their autistic children.  For the details, please link to the blog above.  These mothers could not  get past that first stage when you first get diagnosed.  I remember it well, and I still have my days of worrying about the future; but these ladies seemed to have gotten stuck there. I know nothing of these horrible events, but one thing I am sure of is that they felt like they had nowhere to turn while teetering on the edge of a cliff.  I’ve felt this way and sometimes still do, but I’ve scrounged together a good support system, partly with luck and a lot through loving, caring, compassionate individuals.  Some being family and friends, but others being strangers.  I believe that God has brought all these people together uniquely for us.  Just yesterday I had a conversation about hope.  Well, to be more accurate, I received a good tough-love, in your face smack down from a good friend about not loosing hope.  Even the most optimistic person sometimes needs someone (or something) to bring them back to perspective.  Maybe these moms didn’t have that.

As I said, I know nothing of these individual women, but I do know that education is severely lacking out there for both the adults, as well as all children in the school system of this country.  I’ve seen ignorance color my son’s peers’ perception of him and it kills me inside as a mother and as a citizen of this city, this country.  In my dealings with my own school system, I must say (and give credit) to the professionals here; BUT, and there’s always a “but”, I see a lack of knowledge and and training on the school’s part.  With that said, they ARE trying, but I’m disappointed and surprised that they have no idea as to how to go about putting together strategies.  They are doing so for the first time, as I’ve even been told that they are just putting things together as they go along; and that worries me.  I am wondering why these professionals have not been to workshops that would educate and inspire them.  No money?  Hardly.  I am in an Abbott District and, in general, we get more funding than other areas around here.  Autism has been around a long time and there is no reason why our schools cannot meet the needs of these kids.

Getting back to availability of information.  It seems that it’s very difficult to network with other parents of special needs kids and though I’ve given repeated permission to hand out my telephone number to other moms in the school, for years I have not met even one other parent, though I know that there are at least 8 other kids in my son’s class alone.  A couple of weeks ago, however, through the school, I did manage to hook up with another mom of an autistic girl, two years older than my son and we had a play date and spoke a couple of times over the telephone.  Just this alone, could have immensely helped these tragic moms and maybe they would’ve chosen life instead of death for their kids…. My heart is breaking.

To any desperately overwhelmed parent out there I must say STOP~!!!  Stop and take the time to see the unconditional love your child has for you.  For YOU alone.  The love and trust found in these kids for their parents, and maybe even everyone around them, is sacred.  Every single day of my son’s life has been a learning experience for ME.  Wow.  Here I am thinking that I am going to teach and mold my son into an admirable human being only to be side swiped because I am the one who is the student here, enrolled in a lifeclass originating not from the OWN network, but from the person of my little boy from the moment he took his first breath of life.  LIFE.  OMG, when I think about what what the world has lost with the loss of these little lives.

I’ve just decided to create a new page, listing the resources I come across.   Please check back this time next week for that.  This weekend will be pretty busy, but I will get to it right after that.

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